Privacy Policy
This policy explains what we collect on dementialeague.org and in our emails, how we use it, and your choices. Effective date: October 1, 2026.
Who we are
The Dementia League is the public name of the Center for Integrative Dementia Research and Prevention, Inc., a 501(c)(3) nonprofit at 3608 Pleasant St., South Bend, IN 46615. Email Support@DementiaLeague.org.
What we collect
- Contact form. Your name, email and message.
- Newsletter. Your email, and your name if you give it.
- Donations. Givebutter, our donation platform, handles your payment. Your card details never touch our site. We see your name, contact details and gift amount so we can thank you and send a receipt.
- Research participation. The registry is owned and run by Careberry. When you follow our link to sign up, your information goes to Careberry under its own privacy policy. We never receive it.
- Site usage. We use Google Analytics to see general information such as which pages are visited, how long people stay, and where visitors come from. It sets a cookie and gives us counts, not names. It does not identify you to us, and we do not use it to show you ads. You can block it with a browser setting or an ad blocker and the site works the same.
- Cookies. A few small cookies help the site work. Embedded services, such as the donation form, may set their own.
How we use it
To reply to you, send the newsletter you asked for, process and thank you for donations, improve the site, and meet our legal duties as a nonprofit.
Who we share it with
We never sell, rent or trade your information. We share it only with the services that run the site: Kinsta (hosting), Brevo (email), Givebutter (donations), and the social platforms where we post. We may also share information when the law requires it or to keep someone safe.
Our social media tools
We use Meta (Facebook) and X developer tools only to publish and manage our own posts and to show our own public X posts on this site. Those tools handle technical details such as page and post identifiers and publishing status. We do not use them to collect private profile information from the public, and we never sell or share platform data. Access credentials are stored securely and used only by authorized administrators.
Keep health details out of the contact form
Our contact form and newsletter are not built to protect medical information. Please leave it out.
Children
This site is for adults. We do not knowingly collect information from children under 13. If a child has sent us information, email us and we will delete it.
Your choices
- Every email we send has an unsubscribe link.
- Email us to see or delete the information we hold about you.
- For anything you gave Careberry when registering for research, contact Careberry directly.
- You can block cookies in your browser settings.
Security
We use secure (HTTPS) connections and limit access to the volunteers who need it. No method is perfectly secure, but we take care.
Changes
If we update this policy, we will change the date at the top of this page.
Questions
Email Support@DementiaLeague.org, call 1-574-213-2343, or write to The Dementia League, 3608 Pleasant St., South Bend, IN 46615.
Study Participants Needed Urgently
No diagnosis needed. Adults 18 and over, caregivers welcome. Always your choice.
Careberry's IRB-approved registry. Site code 005. How it works
Live match
Chad E. of Indiana will match your gift, dollar for dollar, up to $100.
“For my mother, Janene”
$25 of $100 raised · 1:1 match
Your gift moves risk reduction forward.
What your gift does: $50
Pays for one research summary, written and checked by our experts.
Pays for a week of research summaries and the emails that carry them.
Pays for a week of summaries and a month of the website and tools behind them.
Pays for a month of summaries and outreach that helps people join studies.
Pays for a quarter of summaries, outreach and the grant work that multiplies every dollar.
Every dollar goes to research summaries, the experts who write them and the systems that deliver them.
Every month.
On the next screen, tick “Give in honor/memory” and type their name there. Givebutter does not let us pass a name across.
Card, PayPal, Venmo, Apple Pay or Google Pay through Givebutter. Tax-deductible to the extent allowed by law.
