Privacy Policy

---

Effective Date: July 8, 2024

Organization: Center for Integrative Dementia Research and Prevention, Inc., doing business as The Dementia League

Website: dementialeague.org

The Dementia League is a nonprofit organization that shares dementia research, prevention information, educational resources, and related public health content.

This Privacy Policy explains how we collect, use, store, and protect information when you visit our website, interact with our content, or use services connected to The Dementia League, including tools we use to publish posts to Facebook and other social media platforms.

We may collect limited information in the following ways:

1. Information you provide directly
   This may include your name, email address, message content, form submissions, newsletter signups, registry interest forms, or other information you voluntarily submit.
2. Website usage information
   We may collect basic analytics information such as pages visited, browser type, approximate location, device type, referring links, and general usage patterns.
3. Social media and API-related information
   The Dementia League may use Meta/Facebook API tools to publish educational posts to our Facebook Page and manage public Page content. When using these tools, we may process limited technical information necessary to publish or manage posts, such as Page identifiers, post identifiers, publishing status, error messages, access permissions granted by authorized administrators, and related metadata.

We do not use the Facebook API to collect private Facebook user profile information from the public. We do not sell Facebook user data.

We may use information to:

• Publish educational content about dementia research and prevention.
• Operate and improve our website and programs.
• Respond to messages or inquiries.
• Send newsletters or updates when a user has signed up.
• Manage public social media posts and nonprofit communications.
• Maintain website security and prevent misuse.
• Comply with legal, regulatory, platform, or nonprofit obligations.
• 
  

The Dementia League may use Meta/Facebook/X developer tools or APIs to post content that we manage. Our API use is limited to nonprofit communications, educational content publishing, and related Page management functions. We do not use Meta platform data for unrelated advertising, resale, profiling, or unauthorized data sharing.

Any Page access tokens or platform credentials used by authorized administrators are stored securely and used only for the purpose of publishing or managing The Dementia League’s own social media content.

We do not sell, rent, or trade personal information.

We may share limited information only with:

• Service providers that help operate our website, email systems, analytics, hosting, security, or communication tools.
• Social media platforms when needed to publish or manage content.
• Legal or regulatory authorities if required by law.
• Authorized personnel or contractors who need access to operate The Dementia League’s services.

Our website may use cookies or similar technologies to understand website usage, improve site performance, and support basic functionality.

Users can control cookies through their browser settings. Disabling cookies may affect some website features.

We keep personal information only as long as reasonably necessary for the purposes described in this Privacy Policy, unless a longer retention period is required by law, nonprofit recordkeeping obligations, security needs, or platform compliance requirements.

Social media publishing logs, API logs, and related technical records may be retained as needed for security, troubleshooting, and compliance.

Users may request deletion of personal information associated with them by contacting us at: Support@dementialeague.org  Please include “Data Deletion Request” in the subject line and describe the information you would like deleted. If your request relates to Facebook or Meta platform data, please include enough information for us to identify the relevant account, Page interaction, form submission, or communication. We will review and respond to deletion requests within a reasonable time, subject to legal, security, nonprofit, or compliance obligations.

If you sign up for emails or newsletters, you may unsubscribe by using the unsubscribe link in the email or by contacting us directly.

The Dementia League does not knowingly collect personal information from children under 13. If we learn that we have collected personal information from a child under 13, we will take reasonable steps to delete it.

The Dementia League provides educational information only. Our website and social media content are not medical advice, diagnosis, or treatment. Users should consult qualified healthcare professionals regarding medical decisions. Unless specifically stated in a separate consent or research authorization process, users should not submit protected health information through ordinary website forms, email, or social media messages. 

We use reasonable administrative, technical, and organizational safeguards to protect information. However, no website, email system, or online platform can be guaranteed to be completely secure.

Our website and posts may link to third-party websites, including research articles, public health resources, social media platforms, and partner organizations. We are not responsible for the privacy practices or content of third-party websites.

We may update this Privacy Policy from time to time. Updates will be posted on this page with a revised effective date.

For privacy questions, data deletion requests, or other concerns, contact:

The Dementia League
Center for Integrative Dementia Research and Prevention, Inc.
South Bend, Indiana
Email: Support@dementialeague.org 

At the Dementia League, we strive to create a welcoming community that promotes diversity, inclusivity, and respect for all. Our mission is to provide a space where members can connect, learn, and grow together.